Chiusa la carovana artistica del Malvito Festival. Firmato il patto per la cultura tra Calabria e Provenza. Un patto per la cultura tra la Calabria e la Provenza. Partenza in stile per il Malvito Festival.

Although it may be out of reach today, a cure for each of the NBIA disorders is in our sights. We care deeply about improving the lives of children and adults with NBIA. Our team at NBIAcure will provide support and information to patients, families, clinicians and researchers, initiate new research studies to lay the foundation for clinical trials, and collaborate with academic and industry partners to develop new treatments.

Has been founded in 2008 by 7 Biobanks supported by Telethon Foundation. Whose purpose is to collect, preserve and offer to the Scientific Community biological samples and related clinical data from individuals affected by genetic diseases, from their relatives or from healthy control individuals. TNGB also offers its services to Patient Organisations. At present, the Network is constituted of 11 Biobanks.

Comité asesor médico y científico. Desde ENACH queremos animar a todos los vecinos de Vila-real y de las poblaciones cercanas a que asistan al espectáculo, ya sea para disfrutar de una noche diferente o para ayudarnos a financiar la investigación que poco a poco nos va acercando a conseguir la cura de la enfermedad que nos afecta.